Last night Bronson was actually calm and quiet and slept most of the night for the nurses – which is a huge improvement after the last couple of nights he’s had. Bronson’s breathing improved a lot overnight and this morning he was taken off of the CPAP and switched to nasal prongs with oxygen. He’s been tolerating it all day with no problems! Woohoo! I hope we don’t have to go back to the CPAP any time soon.
Bronson had a much better day today! First of all, I finally got to give him a bath! He’s received lots of baths from the nurses but they always seem to do it at night when I’m not there, but, today it was my turn! It hasn’t been that long since I’ve bathed a newborn, since my daughter is only 15.5 months old, but with all of the monitor lines, oxygen tubing, PICC and NG tube lines I was a little bit nervous that one of the lines would get caught or come out. I find it hard to move him around easily with everything attached to him but the nurses are accustomed to all of it and they just flip the babies around like it’s nothing!
I’m getting frustrated with hearing different stories from different members of the health care team. Yesterday I was told that although Bronson’s liver has very low function it’s not in the range they would consider “failing”. I know that “low functioning” is still not great but the fact that it’s not “failing”, in my opinion, is great news. However, his liver function tests continue to get worse and his conjugated bilirubin levels are almost as high as they were a couple of weeks ago. I believe that the normal level for conjugated bilirubin is supposed to be 0 or somewhere around there. Bronson’s conjugated bilirubin levels were coming down and were as low as 210 (which is still VERY high) but today they’re back up to 280. The bilirubin is broken down by the liver and then removed by the body (you poop it out!). So, along with the other blood work associated with liver function, these levels are very high and show that the liver really isn’t functioning properly or even close to how it should be. Bronson still has fluid build up in his abdomen (also associated with the liver function) but it appeared to be down a little bit today according to his abdomen measurements. We’re still praying for his liver to jump start and to get things functioning as they should be. Once his liver starts functioning as it should all of the other problems should clear up…I’m really starting to hate the liver!
Also, I almost forgot to mention that Bronson got moved into a crib today which gives him a lot more room. Compared to almost all of the other babies around him, who are all preemies, he’s getting to be so big! I think at the beginning of the week he was weighing somewhere around 8lbs 12oz and they think that this measurement is more of his true weight because he’s lost almost all of the extra fluid he was holding onto for so long.
I keep telling myself that we’ve come so far from where we were but, we also have a far ways to go…. One small victory at a time….One day at a time… We’ll get there soon!