Father’s Day might not have been how we imagined it to be with commuting to the hospital but, it was still a good day! It was Jon’s turn to speak at church (he’s a pastor if I haven’t mentioned that) and he spoke a little bit about our journey with Bronson and, in my opinion, it was a pretty good message! 🙂
When we got to the hospital to see Bronson this afternoon he was relaxing in a swing and looked so peaceful and comfortable. His need for oxygen has been improving and I’m hoping that he’ll be able to come off oxygen all together in the next few days… I hope that the doctors agree! In terms of feeding he is now up to the full amount that he should be at for his weight and was taken off of the TPN (IV nutrients) on Friday! He hasn’t been real thrilled with the bottle feeding and has had some problems with the sucking so he is receiving almost all his breast milk through an NG tube… but at least he’s tolerating the milk alright! For a while Bronson’s liver blood work had plateaued but around Wednesday of this past week Bronson’s liver blood work began getting worse. However, yesterday’s and today’s it remained in about the same range (up or down by 1 or 2). So, although today it wasn’t any better, it also wasn’t any worse. Which, depending on how you look at it, is a good thing. I’m really hoping that this is the week that his liver starts getting better. I know I say the same thing every week but it has to start getting better at some point…. and that point is this week!
“If you have faith as small as a mustard seed, you can say to this mountain, ‘Move from here to there,’ and it will move. Nothing will be impossible for you.”
– Matthew 17:20