My little baby is TWO months old today!! 🙂 Happy 2 month old birthday Bronson!! The last 2 months have gone by so fast but at the same time soooo slow. I was really hoping by this time he’d be home… maybe I can hope for him to be home by 3 months old?? But, I have a feeling that Bronson will be more like 3.5 to 4 months old by the time he’s ready to come home with us. I guess whatever it takes to get him healthy!
This week the nurses started a Bravery Bead Necklace for Bronson. There’s a legend to show what each bead represents and every time he has a procedure or treatment done he gets a new bead added. When he’s older he can look at the necklace and see just how many procedures he had done at such a young age. I think it’s a great program they have for the kids because it’s a way for them to tell others about their treatments. The above link has more information about the program.
I don’t know if I mentioned it or not but at the beginning of last week Bronson was moved to yet another floor at Sick Kids. The floor he was moved to is WONDERFUL! Yesterday was the first time I was able to take him for a walk! Mind you, it was only a walk around the unit/floor he’s on but I was able to show him off a little bit in the halls..which I haven’t been able to do yet! 🙂 I still miss the staff in the NICU but we’re slowly starting to get to know the nurses and doctors on his new floor.
Bronson has had a pretty good week… not much has changed. He is still stable which is great for now! Every day I hope to see an improvement in his blood work but so far it’s remaining the same. He’s still breathing quite fast because of all the pressure his abdomen is putting on his lungs. His breathing is causing him to burn more calories than what he’s getting in his feeds so they tried fortifying his feeds (adding formula to his breast milk to increase the calories) but that wasn’t enough and so on top of that they’ve started him back on the TPN (IV nutrients) and lipids (fats). So hopefully this should help him to start gaining weight quickly.
Overall, Jon and I are handling everything pretty well. Obviously we have our rough days, but, for the most part we’re doing alright. Since we’re handling everything so well I sometimes get the impression that the social worker or nurses think we don’t really understand everything that is going on with Bronson. I guess they want us to appear upset?! This week the social worker was asking me questions like, “how do you feel about the transplant” and, “how do you think Bronson’s life will be after the transplant”. I think I caught her a little off guard because when she asked me how his life would be after the transplant my response was, “Yes, a transplant is a life long thing but it’s not like he’s getting his genitals cut off. If that were the case then we’d have some issues”… LOL I don’t think she’d received that answer before! 🙂
I’m looking forward to this coming week and hoping we make some progress with a live donor. Please continue to keep Bronson in your prayers as we go through the transplant process.