I’m getting excited for all these appointments and clinic checkups at SickKids to slow down! Since August I’ve been there at least every two weeks and occasionally 1-2 times a week. But, I guess in the scheme of things, having Bronson home and going up occasionally is better than going everyday and not being able to bring him home with me!
Yesterday afternoon I received a call to confirm a Neonatal Follow Up appointment for today, which I had totally forgotten about it. So, I
happily unfortunately rescheduled my day of house cleaning and got up at 5:30am to make it to Bronson’s appointment for 9:30. The good news is that he is in the 25th-50th percentile for development. I, personally, think that’s great! A lot of the things he’s behind in (such as complete head/neck muscle control, sitting etc) are mostly related to weak abdominal muscles (caused from his liver transplant surgery). Plus, he has a giant head compared to the rest of his body – I think that would be task for anyone to hold up! Well, I guess his head isn’t THAT big, but his body weight is just below the 3rd percentile for his age and his head circumference is in the 10th percentile.
Also, I was glad to hear that the physiotherapist thought that Bronson’s development delay was mostly from his surgery and hospital stay and not related to neurological problems. Bronson hasn’t had any seizures since he’s been home from the hospital but there is always the chance that neurological delays could show up. So, as of right now, no concerns.
Yes, I said his weight is only around the 3rd percentile. This morning in a short span of 3 hours I had FOUR people ask me if he was 2 months old and each time I had to explain that he had some health issues when he was born and he’s just small. But, he is gaining weight! Today at his appointment he was a whopping 11 lbs 8oz. Even though he was only 6 lbs 4oz at birth (very small compared to my daughter who was 8 lbs 10oz) I’ve been told that his small size is very normal after having liver failure, at least he’s gaining weight and not losing any!
In the beginning of September when my sister, Sarah Beth, went back to work after her surgery (for those of you that don’t know the story she donated a lobe of her liver to Bronson and can read it here) she received an email from a man in Ottawa who had heard about Bronson’s story. Well, he ended up sending us a gorgeous picture and frame for Bronson that he had made! I absolutely love it and want to say another thank you to the person who took the time to make it! (Sorry, I took the picture on my phone and it’s a little pixely)